Cleft and Craniofacial Clinic

Every year in the United States, approximately 6,000 infants are born with a facial difference that requires interdisciplinary care, including cleft lip and palate. At the Portland Center for Cleft and Craniofacial Differences, we want to be your trusted source for pediatric facial reconstructive surgical care. Our Pediatric Craniomaxillofacial Surgery specialty practice has a subspecialized team, providing state-of-the-art care for infants, children and adolescents with a variety of congenital and acquired facial conditions.

If you’re pregnant and have received a diagnosis of cleft lip, cleft palate or head shape abnormality, we offer prenatal counseling to get you the support you need. Know that you are not alone. We will be with you every step of the way. Our team provides treatment that is comprehensive, compassionate and highly personalized for children born with cleft and craniofacial differences that is aligned with the American Cleft Palate-Craniofacial Association Parameters of Care. Our goal is to get to know you and your child so we can best meet your child’s individual needs.

Meet Our Team

Our team of dedicated experts at the Portland Center for Cleft and Craniofacial Differences work together to provide treatment that is comprehensive, compassionate and highly personalized from infancy to adulthood. Your child’s interdisciplinary team will include a dual degree craniofacial surgeon, ENT surgeon, orthodontist, speech and language pathologist, and pediatric dentist as well as other pediatric specialists when needed. The team meets regularly to coordinate care and monitor progress throughout childhood. We will streamline your visit so that multiple specialists can provide you and your child with a unified plan of care.

Members of our team include:

  • Craniofacial Surgeon and Team Director: Caitlin B.L. Magraw, MD, DDS, FACS
  • Otolaryngologist: R. Sterling Hodgson, MD 
  • Orthodontist: Hillary Lathrop, DMD, MS
  • Speech and Language Pathologist: Linda D’Onofrio, MS, CCC-SLP
  • Pediatric Dentist: David Rapheal, DDS
  • Team Coordinator: Wendy Dickson | [email protected]

Conditions We Treat

Approximately 1 in every 700 newborns is born with a cleft lip and/or cleft palate and 1 in every 2,000 newborns will have a skull malformation and require combined craniofacial/neurosurgical treatment. At any age during childhood, tumors and growths can cause craniofacial deformities and functional problems. 

The management of facial differences in children requires a unique understanding of growth and dental development. We incorporate the latest advances in research and technology to treat the most complex problems. 

All these conditions potentially can be corrected through facial reconstructive surgery:

  • Binder syndrome
  • Cherubism
  • Cleft lip and/or palate
  • Cranial and facial asymmetry
  • Craniofacial Fibrous Dysplasia
  • Craniosynostosis (abnormal head shape)
  • Cysts and tumors of the face and jaws
  • Hemangiomas/vascular malformations
  • Juvenile rheumatoid-arthritis-related jaw disorders
  • Nager syndrome
  • Nasal and jaw deformities
  • Oculo-auriculo-vertebral spectrum (Goldenhar syndrome, craniofacial/hemifacial microsomia)
  • Pierre Robin sequence
  • Traumatic injuries
  • Treacher Collins syndrome
  • Other oral and facial asymmetry and facial abnormalities

Services We Offer

Children with facial differences may benefit from various procedures and therapies throughout their lifetime. We offer a broad spectrum of clinical services to children with a diversity of conditions, encompassing the following:

  • Cleft lip and nasal reconstruction
  • Cleft palate repair
  • Surgery for speech disorders (velopharyngeal insufficiency)
  • Maxillary and alveolar bone graft reconstruction
  • Corrective jaw surgery
  • Nasal and lip revision
  • Newborn feeding evaluation
  • Speech and language evaluation and therapy
  • Video fluoroscopy
  • Nasoendoscopic evaluation
  • Audiologic testing
  • Plagiocephaly (abnormal head shape) evaluation
  • Craniofacial imaging
  • Cranial orthotic treatments
  • Skull reconstruction
  • Endoscopic and minimally invasive surgical techniques
  • Craniofacial dysostosis syndromes (including Apert, Crouzon and Pfeiffer, and cloverleaf skull anomaly)
  • Treacher Collins Syndrome
  • Oculo-Auriculo-Vertebral Spectrum (Goldenhar syndrome, hemifacial microsomia)
  • Cranio-orbital reconstruction
  • Computer-assisted treatment planning and intraoperative navigation techniques
  • Combined craniomaxillofacial surgery and neurosurgery approach
  • Pediatric anesthesiology
  • Pediatric Intensive Care Unit
  • Congenital tumors
  • Hemangiomas and Vascular malformations
  • Fibrous dysplasia of bone
  • Neurofibromatosis
  • Cysts and tumors of the face and jaws
  • Pierre Robin syndrome
  • Distraction osteogenesis of the jaws
  • Jaw discrepancies with malocclusion
  • Maxillary and mandibular reconstruction
  • Chin surgery
  • Temporomandibular joint disorder (TMJ)
  • TMJ ankylosis
  • Juvenile rheumatoid-arthritis-related jaw disorders
  • Nasal fracture treatment
  • Maxillary and mandibular (jaw) fracture repair
  • Orbital fracture repair
  • Complex craniofacial injuries
  • Correction of secondary (residual) deformities
  • Soft-tissue reconstruction

Dentoalveolar surgery for medically complex children

Pediatric oral and maxillofacial surgery

Patient Resources and Education

In addition to maintaining an active clinical practice, the Pediatric Craniomaxillofacial Surgery team is involved in ongoing facial reconstructive surgery research. Team members also actively participate in the education of fellows, residents, medical students and dental students. 

Second Opinion

We want to help. A second opinion from the Portland Center for Cleft and Craniofacial Differences can confirm your child’s diagnosis and help you understand your child’s treatment options. Contact us for more information:

Portland Center for Cleft and Craniofacial Differences
Head and Neck Surgical Associates
1849 NW Kearney, Suite 300
Portland, OR 97210